My daughter has an ovarian tumor

[NationalTitles18]

Thank you, Mia is doing pretty well. She gets her fifth chemo tonight which will finish round one. My wife and she come home Tuesday morning for a couple of weeks.

Mia did have a complication of a pneumothorax from the port insertion. For two days they had her breathing oxygen to drive office the nitrogen in her system, theoretically to help heal the pneumothorax.It has not worked. Her surgeon said it will healitself in about three weeks. They removed the oxygen mask and EKG stickers. This improved her spirit,, but she is having pain from it.

Mia is not vomiting, but she is constantly nauseated.She is also experiencing malaise.

I'm sorry she's going through this and y'all with her. We are still praying for you.

 

[GrayTide]

Been out of the loop for a week or so and just caught up on Mia. Her prognosis sounds good, but as we all know, that can change in a flash. I agree with others that say the best medicine from you is your love, support, and encouragement for her. I know it can be overwhelming at times, but that is why your TF brothers and sisters continues to pray for Mia, your wife, and you. Keep the faith, Go Bama we are with you.

 

[Go Bama]

My wife and daughter got to come home Wednesday after a round of chemo. Mia gets chemo every Wednesday in addition the the five days in a row she does every three weeks. When she came home, Mia was carrying an IV bag with four liters of saline to keep her hydrated.

We went back to St Jude on Friday. I was not allowed to go into the hospital because of Covid restrictions. Mia had about four hours of labs, they removed the IV, and we came home. The traveling is hard on her.

Saturday, Mia felt good. She didn't need any pain or nausea medicines. She is not feeling as well today, but still doing well.

I went car shopping all day yesterday. I don't like the idea of my wife and daughter making multiple trips to Memphis in my wife's sixteen year old truck which has 260,000 miles. We haven't decided on anything yet, but are leaning toward a 2020 Ford Edge here in Milan. The dealer is one of my patients and I trust him. The vehicle has 22,000 miles so it's basically new. If anyone has insight on a Ford Edge, I would be obliged.

 

[92tide]

hey go bama, i hope that mia is doing well and that her treatments are going okay. i also hope you and your wife are holding up. please tell her we are all pulling for her.

 

[Go Bama]

Mia is doing pretty well. She just finished her second round of 5 straight days of chemo. She had a pretty rough time during the chemo, but is feeling better now. My wife and Mia got home Tuesday night. Her weekly Wednesday chemo was delayed until today, so they are at St Jude now, but will be back home tonight.

I don't remember if I have posted this or not. There is a marker in the blood that is made by germ cell tumors and hepatocarcinoma called alpha-feto protein (AFP). Mia's level of AFP was over 4000 when she had the tumor. After removal of the tumor it went down to 1500. After the first series of chemo AFP was at 500+. Last Wednesday, before they started the second series of chemo her AFP was 79. We want this number to get to zero or really close to zero.

Hopefully, Mia only has one more five day series of chemo. She is part of a research project to see how she does with three series of five chemo days. My understanding is the normal protocol is for four 5 day sessions. I don't know if they are varying the chemo or not. There are two different drugs used by two different groups.

Mia has a four liter saline bag she has to carry with her for a few days after the chemo to keep her hydrated. It is attached to a pump and goes into her port. She is hoping to lose that albatross today.

 

[TIDE-HSV]

Mia is doing pretty well. She just finished her second round of 5 straight days of chemo. She had a pretty rough time during the chemo, but is feeling better now. My wife and Mia got home Tuesday night. Her weekly Wednesday chemo was delayed until today, so they are at St Jude now, but will be back home tonight.

I don't remember if I have posted this or not. There is a marker in the blood that is made by germ cell tumors and hepatocarcinoma called alpha-feto protein (AFP). Mia's level of AFP was over 4000 when she had the tumor. After removal of the tumor it went down to 1500. After the first series of chemo AFP was at 500+. Last Wednesday, before they started the second series of chemo her AFP was 79. We want this number to get to zero or really close to zero.

Hopefully, Mia only has one more five day series of chemo. She is part of a research project to see how she does with three series of five chemo days. My understanding is the normal protocol is for four 5 day sessions. I don't know if they are varying the chemo or not. There are two different drugs used by two different groups.

Mia has a four liter saline bag she has to carry with her for a few days after the chemo to keep her hydrated. It is attached to a pump and goes into her port. She is hoping to lose that albatross today.

I'm glad she's handling it so well. My daughter's uterine surgery is scheduled for next Monday. Odd, but her regular OB/GYN fired her for going on to the oncological surgeon without a referral from her. The French are funny...

 

[4Q Basket Case]

Go Bama — I’m so glad Mia is doing well, and in good spirits. That’ll be a massively positive factor in the success of her treatment.

I’m also picking up a more upbeat tone in your posts, and am glad that you’re somehow finding it within yourself to handle the toughest situation in your life with grace and dignity. I know it’s a huge comfort to Mia, even though she may not realize that right now.

Earle — I’m so sorry about your daughter’s treatment process. It’s beyond jaw-dropping that a doctor would fire a patient in her circumstances for pure vindictive spite. It has to be incredibly frustrating for everyone involved, but most especially her.

Whether the European healthcare systems handle routine medical issues better than the American system does is debatable. But anybody who thinks a European-style healthcare system is better on truly serious health issues just doesn’t understand how different the reality is from the theory.

Go Bama’s daughter’s experience here vs. your daughter’s experience in France is an object lesson.

 

[TIDE-HSV]

Go Bama — I’m so glad Mia is doing well, and in good spirits. That’ll be a massively positive factor in the success of her treatment.

I’m also picking up a more upbeat tone in your posts, and am glad that you’re somehow finding it within yourself to handle the toughest situation in your life with grace and dignity. I know it’s a huge comfort to Mia, even though she may not realize that right now.

Earle — I’m so sorry about your daughter’s treatment process. It’s beyond jaw-dropping that a doctor would fire a patient in her circumstances for pure vindictive spite. It has to be incredibly frustrating for everyone involved, but most especially her.

Whether the European healthcare systems handle routine medical issues better than the American system does is debatable. But anybody who thinks a European-style healthcare system is better on truly serious health issues just doesn’t understand how different the reality is from the theory.

Go Bama’s daughter’s experience here vs. your daughter’s experience in France is an object lesson.

That thought has passed my mind more than once. She has other serious uncommon medical problems as well and it's the same story with all of them. The bureaucracy and delays are unbelievable. I've told her that it looks to me like they just wait for you to die while waiting on a specialist...

 

[TIDE-HSV]

That thought has passed my mind more than once. She has other serious uncommon medical problems as well and it's the same story with all of them. The bureaucracy and delays are unbelievable. I've told her that it looks to me like they just wait for you to die while waiting on a specialist...

Actually, the surgeon was a pleasant surprise. He just asked when she wanted to do it. However, you can have just basic coverage for a small monthly payment, or pay double or triple and have access to private doctors and hospitals. They pay the 3X, but I can't see that it helped until now...

 

[MobtownK]

I have my own ablation scheduled for Monday - & just got home from my pre-op, in which they found a small fibroid, then go for bloodwork tomorrow. After 30 years of off again on again pain - I'm just done - but not a candidate for hormones, & don't want a full hysterectomy. The ovarian cysts may still be an issue, but they're tapering off over the years. The hospital hasn't even told me yet how much it's going to cost, and I don't care - take my money.

 

[92tide]

best of luck mobtown.

one of our good friends got home from the hospital today after surgery to remove colon cancer. it sounds like they caught it before it spread and they don't think he will need chemo. he got a surprise "you have cancer" diagnosis about a month ago during a colonoscopy.

 

[Go Bama]

I have my own ablation scheduled for Monday - & just got home from my pre-op, in which they found a small fibroid, then go for bloodwork tomorrow. After 30 years of off again on again pain - I'm just done - but not a candidate for hormones, & don't want a full hysterectomy. The ovarian cysts may still be an issue, but they're tapering off over the years. The hospital hasn't even told me yet how much it's going to cost, and I don't care - take my money.

Yes, good luck with you your surgery. I hope you get the relief you need and recovery is speedy and pain free.

Good luck also to Earle's daughter.

I just got off the phone with a close friend who is taking chemo and radiation at Vanderbilt for a glioblastoma, a brain tumor. He is in good spirits and feeling well. I fear his prognosis is not good, but who knows.

 

[TIDE-HSV]

Yes, good luck with you your surgery. I hope you get the relief you need and recovery is speedy and pain free.

Good luck also to Earle's daughter.

I just got off the phone with a close friend who is taking chemo and radiation at Vanderbilt for a glioblastoma, a brain tumor. He is in good spirits and feeling well. I fear his prognosis is not good, but who knows.

It's what killed my brother Eddie and also a first cousin. The survival rate is very low...

 

[MobtownK]

It's what killed my brother Eddie and also a first cousin. The survival rate is very low...

My Grandad as well. He was fully cognizant longer than any of us expected.

 

[B1GTide]

best of luck mobtown.

one of our good friends got home from the hospital today after surgery to remove colon cancer. it sounds like they caught it before it spread and they don't think he will need chemo. he got a surprise "you have cancer" diagnosis about a month ago during a colonoscopy.

Happened to me 3 years ago. I ran a marathon, returned home, had my colonoscopy and was told of (and shown pictures of) the colon cancer. Colonoscopies save lives - saved mine, with 100% certainty.

 

[TIDE-HSV]

Happened to me 3 years ago. I ran a marathon, returned home, had my colonoscopy and was told of (and shown pictures of) the colon cancer. Colonoscopies save lives - saved mine, with 100% certainty.

In my case, it was a precancerous adenoma, blocking 50% of the cecum, the opening from the small bowel into the colon. They still take the entire right side colon, in either case. I'll PM you about details. No need to bore everyone...

 

[B1GTide]

In my case, it was a precancerous adenoma, blocking 50% of the cecum, the opening from the small bowel into the colon. They still take the entire right side colon, in either case. I'll PM you about details. No need to bore everyone...

Mine was in the same location - actually a great location for this type of cancer (according to my surgeon). It was the size of a softball. Same surgery.

 

[TIDE-HSV]

Mine was in the same location - actually a great location for this type of cancer (according to my surgeon). It was the size of a softball. Same surgery.

Mine had hidden until the two-step purge came in...

 

[TIDE-HSV]

Well my daughter had the first surgery this morning. They didn't complete it, pending a pathology report. That will be three weeks, in Lyon, second largest city in France. Again, this is "free," not-for-profit medicine, or, at least, single payer...

 

[GrayTide]

I have been out of the loop for awhile, but wanted to let Go Bama, Gtown, Earle, and now Mobtown K that I pray for y'all every night. I am over due for a colonoscopy. My mother died from colon cancer many years ago at age 42.