My daughter has an ovarian tumor

[Go Bama]

I realize this is the wrong forum, but most of the people I hold dear on TF are here in NS, and those are the folks I want to reach. If the thread needs to be moved, I'm fine with that.

My 13 yo daughter, Mia, has been having abdominal issues for a couple of weeks. She felt like she couldn't empty her bladder. We suspected a UTI, but two different tests were negative. She was also given a laxative to see if that would help. This morning at 4:00 AM she complained of her side and back hurting. My wife took her to the doctor today where an ultrasound revealed a six inch mass above her bladder.

Mia is scheduled for a CT scan on Thursday. She is doing fine; my wife is not doing as well. Please keep them in your thoughts and prayers. Nothing else in the world matters when something is not right with your children.

 

[MobtownK]

I realize this is the wrong forum, but most of the people I hold dear on TF are here in NS, and those are the folks I want to reach. If the thread needs to be moved, I'm fine with that.

My 13 yo daughter, Mia, has been having abdominal issues for a couple of weeks. She felt like she couldn't empty her bladder. We suspected a UTI, but two different tests were negative. She was also given a laxative to see if that would help. This morning at 4:00 AM she complained of her side and back hurting. My wife took her to the doctor today where an ultrasound revealed a six inch mass above her bladder.

Mia is scheduled for a CT scan on Thursday. She is doing fine; my wife is not doing as well. Please keep them in your thoughts and prayers. Nothing else in the world matters when something is not right with your children.

I hope that they can find what is wrong, and get it treated quickly. Abdominal issues are just awful and really can be scary to be honest.

 

[92tide]

i am so sorry to hear this and i hope that everything is ok with your dear mia.

 

[Jon]

there is truly nothing worse. Best to you and yours

 

[B1GTide]

Terrifying does not begin to describe - I hope and pray that she will be okay. Please stay positive. Hard, I know, but believe that she will be alright. Believe it.

 

[crimsonaudio]

Lifting prayers for you guys, GB.

 

[Rolltide51]

I realize this is the wrong forum, but most of the people I hold dear on TF are here in NS, and those are the folks I want to reach. If the thread needs to be moved, I'm fine with that.

My 13 yo daughter, Mia, has been having abdominal issues for a couple of weeks. She felt like she couldn't empty her bladder. We suspected a UTI, but two different tests were negative. She was also given a laxative to see if that would help. This morning at 4:00 AM she complained of her side and back hurting. My wife took her to the doctor today where an ultrasound revealed a six inch mass above her bladder.

Mia is scheduled for a CT scan on Thursday. She is doing fine; my wife is not doing as well. Please keep them in your thoughts and prayers. Nothing else in the world matters when something is not right with your children.

Praying for a full recovery! God Bless your family!

 

[Crimson1967]

Prayer sent for you and your family. Stay strong for your wife and daughter. Keep us updated.

 

[NationalTitles18]

Praying this is benign and easily treatable with a full recovery. Praying for you all. I imagine you guys are quite anxious to get answers and Thursday seems like forever away.

 

[Tug Tide]

Praying not just for your daughter and family, but also for all doctors, nurses and med techs involved in her care and recovery

 

[Go Bama]

I sincerely appreciate all the prayers and kind words. I'll update when we know more. I think everything is going to be OK, but your support certainly helps. It is a scary time for us.

 

[Chukker Veteran]

Sometimes not knowing what to expect is the worst part. I'm praying the doctors can get her well again soon.

 

[gtowntide]

We will pray for all of you and ask God to give you peace. God bless you all.

 

[4Q Basket Case]

Stay positive, GB. Try to get your wife to stay positive, too.

Regardless of the cause of the mass, Mia will be getting treatment for it. It’s incredibly important to the success of her treatment that she approach it with confidence, and she will be taking her cues from the two of you.

It’s perfectly natural for her, you and Mrs. GB to be anxious and scared. But Mia really needs to be confident in the doctors, nurses, therapists, and treatments.

You will have your own fears and doubts and come-aparts, but they need to be expressed in private, away from Mia. You have an unfathomably tough job right now....you have to be strong enough to make Mia strong.

Hang in there, brother. You will never be a better dad than you’re being right now.

 

[Padreruf]

Stay positive, GB. Try to get your wife to stay positive, too.

Regardless of the cause of the mass, Mia will be getting treatment for it. It’s incredibly important to the success of her treatment that she approach it with confidence, and she will be taking her cues from the two of you.

It’s perfectly natural for her, you and Mrs. GB to be anxious and scared. But Mia really needs to be confident in the doctors, nurses, therapists, and treatments.

You will have your own fears and doubts and come-aparts, but they need to be expressed in private, away from Mia. You have an unfathomably tough job right now....you have to be strong enough to make Mia strong.

Hang in there, brother. You will never be a better dad than you’re being right now.

He said all that needs to be said...prayers for you all.

 

[TIDE-HSV]

I realize this is the wrong forum, but most of the people I hold dear on TF are here in NS, and those are the folks I want to reach. If the thread needs to be moved, I'm fine with that.

My 13 yo daughter, Mia, has been having abdominal issues for a couple of weeks. She felt like she couldn't empty her bladder. We suspected a UTI, but two different tests were negative. She was also given a laxative to see if that would help. This morning at 4:00 AM she complained of her side and back hurting. My wife took her to the doctor today where an ultrasound revealed a six inch mass above her bladder.

Mia is scheduled for a CT scan on Thursday. She is doing fine; my wife is not doing as well. Please keep them in your thoughts and prayers. Nothing else in the world matters when something is not right with your children.

God, I hope it's negative. I guess I should say that my daughter in France is facing similar. She has a lesion on her right sacral region and is waiting the months it takes in France for the appt with the oncologist to roll around. She also has been tentatively dxed with "stiff person syndrome," which is an autoimmune disease which progresses to the point of paralysis, although there are treatments. Being French medicine, she may find out one day. She's applied for disability. Her and her husband's little dream restaurant has been shut down by the government for a year now for Covid. Nobody ever worked harder to make a business succeed. Whether it can be revived by her husband alone is up in the air right now. Everyone is suffering in one way or another...

 

[NationalTitles18]

God, I hope it's negative. I guess I should say that my daughter in France is facing similar. She has a lesion on her right sacral region and is waiting the months it takes in France for the appt with the oncologist to roll around. She also has been tentatively dxed with "stiff person syndrome," which is an autoimmune disease which progresses to the point of paralysis, although there are treatments. Being French medicine, she may find out one day. She's applied for disability. Her and her husband's little dream restaurant has been shut down by the government for a year now for Covid. Nobody ever worked harder to make a business succeed. Whether it can be revived by her husband alone is up in the air right now. Everyone is suffering in one way or another...

Hopefully the tumor is benign.

I've only ever seen one case of Stiff Person Syndrome. The amount of controlled substances, including valium for spasms AND xanax for anxiety and long and short acting pain meds, was unreal - and other muscle relaxers on top of that. I was only covering for a colleague, but the amounts made me quite nervous even though it was long term with the same regimen.

I hope you all get some good news soon. Sounds like she really needs some.

 

[Go Bama]

God, I hope it's negative. I guess I should say that my daughter in France is facing similar. She has a lesion on her right sacral region and is waiting the months it takes in France for the appt with the oncologist to roll around. She also has been tentatively dxed with "stiff person syndrome," which is an autoimmune disease which progresses to the point of paralysis, although there are treatments. Being French medicine, she may find out one day. She's applied for disability. Her and her husband's little dream restaurant has been shut down by the government for a year now for Covid. Nobody ever worked harder to make a business succeed. Whether it can be revived by her husband alone is up in the air right now. Everyone is suffering in one way or another...

Goodness, I hate to hear that about your daughter. She has had way more than her fair share of obstacles in the last year.

I was unfamiliar with stiff person syndrome. In looking around to familiarize myself with the disease I came across this article about two women who went into remission after autologous stem cell transplantation.

Two case reports of rare stiff person syndrome

Two female patients achieved clinical remission from the rare, debilitating neurological disease called stiff person syndrome (SPS, which can be marked by a 'tin soldier' gait) after an autologous -- from your own body -- stem cell transplant that eventually allowed them to return to work and...

www.sciencedaily.com

 

[TIDE-HSV]

Goodness, I hate to hear that about your daughter. She has had way more than her fair share of obstacles in the last year.

I was unfamiliar with stiff person syndrome. In looking around to familiarize myself with the disease I came across this article about two women who went into remission after autologous stem cell transplantation.

Two case reports of rare stiff person syndrome

Two female patients achieved clinical remission from the rare, debilitating neurological disease called stiff person syndrome (SPS, which can be marked by a 'tin soldier' gait) after an autologous -- from your own body -- stem cell transplant that eventually allowed them to return to work and...

www.sciencedaily.com

I'll try her and see if she's discovered it. Medicine in that corner of France is a generation behind here. They are in a rural area, but they live within an easy drive of Lyon, one of the major population centers of France. The has some other problems concurrent with the autoimmune one. The rheumatologist she's seeing has just put her on methotrexate, so, at last, something is being tried...

 

[NationalTitles18]

I'll try her and see if she's discovered it. Medicine in that corner of France is a generation behind here. They are in a rural area, but they live within an easy drive of Lyon, one of the major population centers of France. The has some other problems concurrent with the autoimmune one. The rheumatologist she's seeing has just put her on methotrexate, so, at last, something is being tried...

Plasmapheresis and IVIg are two other common treatments to try to beat back the immune system.